Caring for someone with dementia is one of the most challenging and heart-wrenching roles a person can take on. Whether you’re a spouse, child, friend, or professional caregiver, you’re navigating a landscape that changes by the day—sometimes by the hour.

You’re not alone. Across the world, millions of caregivers are walking this path with strength, love, and exhaustion. At Brain Regain, we’re not just focused on reversing cognitive decline—we’re focused on supporting you, the caregiver, every step of the way.

We recently asked a simple but powerful question:

“What do dementia caregivers need most—and what questions do they keep asking?”

Here’s what we discovered—and how you can share your voice too.

Top Needs Shared by Caregivers

Caregivers often don’t know what to ask for because they’re so focused on giving. But when we asked them to pause and reflect, five core needs rose to the surface again and again:

1. Clear Guidance on What to Expect

Many caregivers feel like they’re flying blind. They crave a roadmap—something that shows them what to expect as dementia progresses, and how to prepare emotionally and logistically.

2. Access to Effective Treatments

There's overwhelming confusion about which therapies work, which are scams, and what actually helps slow or reverse decline. Caregivers want trustworthy recommendations, especially for non-drug options that align with their loved one’s values.

3. Emotional and Mental Support

Isolation is one of the heaviest burdens. Many caregivers say they just need someone to talk to—someone who gets it. Support groups, coaching, or even one-on-one check-ins can be a lifeline.

4. Financial and Legal Guidance

Between managing healthcare costs, long-term care, and power-of-attorney decisions, caregivers are desperate for clear, step-by-step guidance to make informed decisions.

5. Time and Respite

Even the most dedicated caregivers need rest. Short breaks, trusted respite care, or help from family and friends can make the difference between burnout and sustainability.

The Most Common—and Urgent—Caregiver Questions

When caregivers open up, the questions come pouring out. Some are medical. Some are emotional. Some are simply cries for help.

Here are some of the most frequently asked questions we’ve heard:

• “How do I handle aggressive or unpredictable behavior?”

• “Is it normal for them to remember something clearly one moment, and forget everything the next?”

• “How can I keep them safe at home without making them feel trapped?”

• “What can I do to actually improve their brain health?”

• “What foods or supplements should I be giving them?”

• “When is it time to consider a memory care facility?”

• “How do I talk to family members who don’t understand what I’m going through?”

• “What do I do when they no longer recognize me?”

If any of these questions resonate with you, know this: You're not alone in asking them. And there are answers—science-backed, compassionate, and actionable ones—that can bring hope and clarity.

We Want to Hear from You

At Brain Regain, we’re building resources that actually help—not just more generic tips. But to do that, we need to hear directly from you.

👉 What are the top 5 things you need most right now as a caregiver?
👉 What are the biggest questions you find yourself asking, over and over again?

You can leave a comment below, message us on social media, or join our private caregiver community at www.thebrainregain.com.

Together, we can make caregiving more manageable, more hopeful, and more supported.

Because reversing dementia isn’t just about the patient—it’s about restoring life for everyone who loves them.